Ijamsville, MD
PB Dye Golf Club
9th Annual Dillon Papier Charity Golf Tournament
Fri, September 18, 2015 at 9:00AM (Eastern)
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EVENT DETAILS
Dillon loves spending time with his family as much as he loves baseball, music, and eating gourmet food.

In 2005, Dillon was diagnosed with Niemann-Pick Type C, which is a rare, devastating and always fatal disease that effects only 500 cases world wide.

The symptoms of this disease include enlarged spleen and liver, clumsiness and loss of muscle control, deterioration of speech, seizures, and progressive neurological and intellectual decline. Many children die before the age of 10, or within 5-10 years of the diagnosis.

With your generosity the National Niemann-Pick Disease Foundation, Inc. can achieve the necessary funding for critical research in hope of a successful treatment in time to spare Dillon and the other children from the devastating affects of this fatal disease that robs them of our most precious gift-life.

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